Days Left to help
🎉Amazing News! Zolgensma Registered in Singapore!
Update: Zolgensma, the life-changing treatment for Baby Shamel, has been officially registered in Singapore! This means that the cost of the medication has significantly reduced from 3 million SGD to 2.4 million SGD.
With your incredible support, we have raised 2.3 million SGD so far, bringing us closer to our goal. Now, with Zolgensma registered, our insurance will cover the remaining 100k SGD.
We are immensely grateful for your unwavering support throughout this challenging journey. Your prayers, love, and generosity have made a world of difference to Baby Shamel and his family.
As we approach the final steps, we want to express our heartfelt appreciation for every single contribution. Words cannot fully express how much your support has meant to us.
Stay tuned for further updates! Let's continue to keep Baby Shamel in our thoughts and prayers as we eagerly anticipate his upcoming treatment in June.
Thank you from the bottom of our hearts!
- The Baby Shamel Support Team
Every contribution counts
Please donate generously to give Shamel hope and a second chance at life. We need 2.4 Million Singapore Dollars (1.77 Million USD) to treat Shamel in time
S2,306,000
2.4 Million SGD
CTA 4
Sri Lanka
If you wish to donate in LKR, you may do so to the following account.
Sampath Bank (Branch - Kandy Super)
A. R. Pilapitiya
AC No - 100753883450
Paypal
Donate easily through your PayPal account from accross the globe. Sign in to your account and trasnsfer funds to arpilapitiya@gmail.com your every dollar counts
Donate
GoFundMe
Donations can also be made through our Go Fund Me account, follow the link below to make your donation. Your every dollar counts. We thank you for your generosity
Donate
Singapore
Shamel’s condition, and the treatment methods have been verified by Ray of Hope Singapore by closely liasing with the physician treating him in Singapore.
DonateYour little help means a lot
we are humbly turning towards the generous community for help securing the treatment for our baby Shamel. No donation is too small. Nevertheless, there is hope for Shamel, and we thank you in advance for your generosity.
In addition to raising funds to help Shamel receive treatment in time, we also seek your help in raising awareness about this worthy cause. Please share Shamel's story within your networks so that Shamel stands a chance of receiving as much as help possible
DonateAbout Shamel
What is SMA
SMA is a rare neuromuscular condition that causes muscles to become weak and damages the nerve cells in the brain and spinal cord. It leads to progressive muscular weakness and affects the ability to independently sit, crawl, stand, walk, swallow and even breathe. Shamel is currently in a position where he can only sit with support, and that too, not for long minutes. It is very hard for us as parents to see him struggle to move around and exhaust himself from trying to take a toy. Every child should be able to play. Without medication, further deterioration and eventual death of his motor neurones will lead him to total immobility and weakness.
Shamel’s hope lies in Zolgensma, a one-time gene therapy acting on the gene by replacing the function of the missing or non-working Survival Motor Neurone (SMN1) gene. Shamel needs to receive Zolgensma before he turns 2.
we are humbly turning towards the generous community for help securing the treatment for our baby Shamel. No donation is too small. Nevertheless, there is hope for Shamel, and we thank you in advance for your generosity.
100% of your donations will go to Shamel’s treatment.
